Sunday, July 21, 2013

The Power of Three

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The Power of Three

The journey that leads to the NICU can be just as complicated, stressful and uncertain as the NICU experience itself but having top-notch medical care and staying optimistic can be crucial to a successful outcome. This was the case for Elizabeth Powell and her now 14-year old triplets.

Elizabeth’s pregnancy was full of surprises from the beginning. At age 40, after one miscarriage and a single round of self-administered fertility drugs, she became pregnant with triplets. Her obstetrician had given her less than a 5% chance of having twins, so it came as quite a surprise when an early visit revealed three heartbeats! The pregnancy was immediately elevated to high risk due to Elizabeth’s age and the fact that she was carrying multiples.

Doctors and professionals Elizabeth spoke with discussed the health benefits of reducing a triplet pregnancy to twins. A triplet pregnancy combined with advanced maternal age, complicated matters and lowered the chances of delivering three healthy babies. Another early hurdle was genetic testing.

When she was 11 weeks pregnant, Elizabeth had CVS testing with a genetic specialist whose expertise, much to Elizabeth’s surprise, turned out to be selective reduction. At 13 weeks gestation, she received good news – the CVS results showed all three babies were fine. Elizabeth and her husband made the decision to go forward with the triplet pregnancy.

The pregnancy didn’t get any easier, but Elizabeth had a few factors on her side. She was fit from being a runner and she was receiving care from an experienced maternal fetal medicine doctor at Georgetown University Medical Center which had a top notch neonatal intensive care unit (NICU.) She was able to tour the NICU and see what small babies look like and the type of care they receive. Her doctor also prepared her to be on bed rest at 20 weeks and to expect to be hospitalized by 28 weeks.

At 20 weeks, Elizabeth was measuring at full term size and the pregnancy seemed to be progressing well. The next week, however, she learned she had an incompetent cervix. She was hospitalized and had an emergency cerclage which held for only a short time. At 23 weeks, she had another emergency cerclage. The doctor had invented a special stitch that was used and, this time, the cerclage held. After receiving magnesium and being hospitalized a few weeks, Elizabeth was released and went home.

At 27 weeks, the babies were checked for distress and each appeared to be a healthy 3 ½ pounds. A month later, Elizabeth’s blood pressure soared and she began retaining water. She learned that she had preeclampsia. Her condition became so severe that she began retaining between three and four pounds of water a day. Her entire body, including her eyes, was filling with water. At 32 weeks, Elizabeth’s condition became so severe that the doctor scheduled the delivery.

On January 5, 1999, eight weeks before their March 1st due date, Victoria (2 lbs. 11 oz.), William (3 lbs. 9 oz.) and Edward (3 lbs. 11 oz.) were delivered via a planned and unremarkable Caesarian birth.
A complication of preeclampsia is that it typically worsens after giving birth. After the triplets were born, Elizabeth’s vision became blurry and impaired. She was unable to read and went color blind for a little while. Fortunately, her doctors assured her the condition would subside when the water drained from her eyes and the rest of her body.

Elizabeth’s condition prevented her from seeing the triplets for three days after they were born. The babies were small but did not have any major medical issues. There were respiratory problems to overcome and the babies came home on monitors. The boys were released from the NICU after 3 ½ weeks. Victoria was tiny, but she was a fighter. She encountered jaundice and respiratory issues, but dodged brain bleeds and heart issues. She had a hernia, which was surgically repaired before she was discharged from the NICU. At one point, she also tested positive for RSV and had to be quarantined. Thankfully, she never contracted the virus and she was released from the NICU after six weeks.

While the triplets were in the NICU, Elizabeth was able to visit every day. It was eye-opening to see other babies and their families struggling and, in some cases, dying. When her own ordeal was over, she was asked to help other parents and families with premature babies at Georgetown Medical Center by moderating group discussions. The sessions allowed her to give back to the hospital she credits with bringing her triplets into the world safely.

Thankfully, due to a combination of good fortune, good medical care and diligence, everything worked out for Elizabeth and her family as well as it possibly could have. The boys grew very quickly and, although Victoria took longer to catch up, they all eventually climbed onto the scale for normal height and weight. At 14, the triplets have talents and interests in the athletic, academic and musical realms. They are happy and full of life.

Despite the odds against it and the circumstances that developed, Elizabeth always believed she would have three healthy children and she remains convinced that her optimism was crucial to her success.

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Saturday, June 29, 2013

Sweet Pea Pendant Fundraiser Update

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We are more then half way to our goal for our Sweet Pea Pendant Fundraiser! Many thanks to all that have ordered so far! If you haven't had a chance to check them out, please take a moment to visit our website. Mama B’s Sweet Peas Bedazzling Pendants are hand-wrapped sterling silver pea pod jewelry with your choice of 1-5 "peas" (Swarovski Crystal Pearls) in the colors of your choice. Order one today to represent the sweet pea(s) in your life!


http://projectsweetpeas.com/index.php/component/jevents/icalrepeat.detail/2013/06/05/1191/-/mama-b-s-sweet-peas-fundraiser?Itemid=129
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Friday, June 21, 2013

The Sweet Pea Auction 2013: Seeking Donations for Annual Charity Auction

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The Sweet Pea Auction


We have our annual auction coming up this August and need your help! We are currently searching for individuals and businesses to donate items and baskets. This is a great way for your business to receive some advertising while supporting a wonderful cause!

For more information, please send us an email at info@projectsweetpeas.com.
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Monday, June 10, 2013

Sweet Pea Pendant Fundraiser

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We are kicking off our summer fundraiser with Mama B's Sweet Peas! These beautiful Bedazzling Pendants are hand-wrapped sterling silver pea pods with 1-5 "peas" (Swarovski Crystal Pearls) in the colors of your choice. All profits go to help us continue our mission of providing comfort to NICU and bereaved families. Buy one now to represent the special sweet peas in your life!



http://projectsweetpeas.com/index.php/component/jevents/icalrepeat.detail/2013/06/05/1191/-/mama-b-s-sweet-peas-fundraiser?Itemid=129
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Saturday, June 8, 2013

Guest Posts

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Thank you for your interest in sharing on our blog. We invite you to submit a post surrounding life in the ICU, after discharge, or pertaining to pregnancy and infant loss. Due to the volume of written work that we receive, please understand that we may not be able to publish your post. If your post is selected, we will notify you through email. By submitting your work, you agree to allow us to make necessary edits for grammatical errors.

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Monday, April 29, 2013

Baby Products and Cosmetics – how do they compare?

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Baby Products and Cosmetics – how do they compare?



When you hear the term Green NICU you automatically think the best possible products are being used to care for your child. After attending a webinar with greenNICU.com we have learned about chemicals found in various cosmetics. How do cosmetics and baby products compare? The chemical components are the same. Some chemicals are unavoidable, BUT, you can take steps to minimize your exposure.

Why should you minimize your exposure? Did you know that each person has a body burden? This is the total amount of chemicals present in the human body at any given time. Each human has a unique chemical load depending on where you live, where you have traveled, what you eat, etc… We are exposed by our water supply, our air, and even things found in our home. One billion tons of chemicals are produced every year and approximately 700 of them are new each year.

It is also possible to pass chemicals onto a fetus since the placenta is unable to filter these chemicals. This means a fetus is contaminated BEFORE birth. A CDC report from 2009 found that Americans have on average 212 chemicals in them. A fetus was showing to have an average of 287 chemicals (found in cord blood) with 180 of these being linked to cancer, 217 were neurotoxins and 208 could cause birth defects.

Body care products, which we all use on ourselves and our family, are considered cosmetics. Cosmetics are not regulated by the FDA as thoroughly as drugs, biologics, and medical devices. In fact, cosmetic products and ingredients are not subject to FDA premarket approval authority. “Due to holes in federal laws, it is perfectly legal for perfumes, colognes, body lotions, shampoos and other cosmetics and personal care products to contain sensitizers, hormone disrupters, reproductive toxicants, carcinogens and other toxic chemicals linked to harmful health defects.” Kathi Salley Randall, creator of greenNICU.com. There are several organizations that rally to strengthen FDA regulations on cosmetics and you can definitely be part of the voice if that is what moves you. For now though, I’d like to move on to the top silent dangers in baby care products.

The three silent dangers in baby care products are: Fragrances, Preservatives and Contaminants.

Did you ever notice that you never see the chemical make-up of any specific fragrance? On bottles it is simply labeled as “fragrance”. These are considered trade secrets and are protected hiding whether they were produced chemically, naturally or even derived from petroleum. In fragrances you will find phthalates. Phthalates are an additive and they are not bound to the things they are added to. This means they can seep out into the body. They are also considered an endocrine disruptor. Another endocrine disruptor is BPA which can be found in cans and bottles (although this is changing), which means it can leach out into our food. Endocrine disrupters are said to interfere with normal development of reproductive organs (especially in males).

Parabens are preservatives added to products to minimize microorganism growth (to preserve things). Parabens mimics estrogen in the body and is found in breast tumors. Parabens to look for: methylparaben, ethylparaben, propylparaben, butylparaben, isobutylparaben, isopropylparaben, benzylparaben. You may even find several of these in one product. Another to look for is Q15 (Quaternium 15). This is a formaldehyde-releasing preservative (FRP) which slowly releases small amounts of formaldehyde to preserve the shelf life of a product.

The No More Toxic Tub Report (from March of 2009) found that many common products are contaminated with harmful chemicals that are not listed on the label. In particular, you should watch for 1,4 dioxane. This is found in products that create suds. I’m sure you thought those suds meant that the product was working and really cleaning, but in reality, it’s a chemical reaction. 1,4 dioxane is used quite often but not required to be listed on the label. There are over 48 common products which include 1,4 dioxine such as: Hello Kitty Bubble Bath, Huggies Baby Wash, Johnson’s Baby Wash, Seasame Street Bubble Bath, Clariol Herbal Essences shampoo, and Olay Complete Body Wash.

What can you do? Basically do whatever you can to minimize your exposure to these chemicals. The best suggestion is to do your research and inventory your products. In fact, here are your two new best friends. www.SafeCosmetics.org is a site where you can find a wealth of information on things we discussed and more. This would be a great site to learn how to take more action. http://www.ewg.org/skindeep/ has a database of more than 79,000 products. Each item is given a score which will arm you with the information you need to make the right choices for yourself and for your family. You can also choose to donate $5 and receive a free cosmetics guide.

Remember, chemicals absorb into the body faster when your skin is wet, so be extra careful with anything you’d apply on wet skin.

As mothers we have a million and a half decisions to make every day and this is only adding to your list. Ultimately it’s your decision how involved you want to get into minimizing chemicals in your body burden (and that of your family’s). We have given you enough information to get started and to understand how baby products and cosmetics compare. It’s up to you on how Green you want to be.

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Remembrance Plantings Serve as Connection Between Angel Parents and Their Children

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Remembrance Plantings Serve as Connection
 Between Angel Parents and Their Children


When parents lose a child – no matter what age, friends and family want to know how they can best help the grief-stricken. Some offer homemade meals, an ear to listen or shoulder to cry on, or make a donation to an organization in the child’s memory. Although none of these gestures can ever bring the beloved child back to its family, the gestures show love and a commitment to keeping the child’s life/memory alive.

One of the most touching gestures for Theresa Gill Wellman, a Project Sweet Peas project leader who lost her son Donny after six days as the result of a rare birth defect (congenital diaphragmatic hernia), was a garden that a friend offered to plant in Donny’s memory. Wellman spent that spring with her friend on this labor of love – watering the flowers, meditating beside it and contemplating how she would best navigate life without her son.

“I’ve been comforted by this simple gesture – and by the knowledge that my son had touched others’ hearts,” Wellman said.

Wellman then decided to plant a memory garden at her own house – something that she could cultivate and nurture as often as she wanted. Although she and her family no longer live there, she hopes to establish one again soon at her next permanent residence.

“A memorial garden is very therapeutic because it helps establish a connection to your child,” she said. “It is so hard to learn how to parent your angel. The garden provides a gateway; it provides a pathway for grief and healing. It gives a newly grieving parent something to do that is directly related to their child.”

PSP writing volunteer Erin Hart is also a proponent of remembrance plantings. After her twin sons Ethan Patrick and Casey Lawrence passed after being born prematurely at 22w5d gestation, she received two blue hydrangeas that she promptly planted. A family member also purchased plants of her choosing (two hibiscus) that she potted the same day she received them. The gestures were touching – giving life when lives were lost.

But the most healing activity was planting her own memory garden – one that, coincidentally, surrounds a tree with twin trunks, something she didn’t notice until a co-worker pointed it out in a picture Hart had taken.

“I needed something outside of the cemetery – a beautiful place where I could sit, think and talk to my sons. Each spring when I’m planting the garden, I feel their presence. When I’m digging the holes for their gerbera daisies and the windchime above me tinkles in the breeze, I know they are with me. It is one of the very few things I can still do for them, and I imagine they are giddy with excitement to know how much love I pour into this.”
Not everyone has a green thumb for memory plantings they do themselves, so they or their loved ones may opt to purchase a plant or a tree in the child’s name. When Shannon Mason, PSP’s bereavement and writing director, lost her babies, her aunt and uncle dedicated a magnolia tree along a highway in Mississippi under the Keep Mississippi Beautiful “Avenue of the Magnolias” program. According to the program website, a $25 contribution will dedicate a specific newly planted tree in honor or memory of your designee.1

There are many other similar organizations that allow families to purchase or dedicate plantings:
  • Rowan Tree Foundation (RTF), Parker, Colo. – An organization that provides support after the death of a child, RTF initiated plans for an Angel Memorial Healing Ground in the town of Parker. Families can sponsor a tree, other plants or landscaping materials from RTF’s landscaping wishlist.2 The completed garden will be a reflective, healing location for grieving families to visit and feel connected to their children.
  • TreeGivers, Littleton, N.H. – TreeGivers offers customized packages that contain a sympathy letter and card, as well as an official certificate of planting. Trees are planted on public lands all across the country.3
  • The Comfort Company, Geneva, Ill. – The Comfort Company offers boxed memorial gift trees that honor loved ones. Families can select a memory tree online, which are then placed into decorative boxes for shipping.4    

Plants will never replace our precious angels, but they offer a way for family and friends to stay connected to the grieving family – and honor the life of a child who was taken much too soon.

“Even though my son died, his spirit lives on,” Wellman said. “When I plant these flowers, water them and take care of them – I think of how Donny continues to live. When I watch the flowers grow and bloom, I can feel his love growing and blooming within my heart. Nature is one of my connections with Donny – and it is through nature and spending time within it that he communicates with me, and I can be a mommy to my angel.”

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Sources
1 http://www.mdac.state.ms.us/programs/keep_ms_beautiful/keep-mississippi-beautiful-magnolias.htm

2http://www.rowantreefoundation.org/2012/02/465/
3http://www.treegivers.com/index-m.html
4http://www.thecomfortcompany.net/memorial-sympathy-gift-trees.aspx
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