Thursday, July 5, 2012

Thank You Thursday: Global Hydranencephaly Foundation

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Today is Thank You Thursday! Every Thursday we would like to take the opportunity to show our appreciation to organizations and individuals making a difference in the lives of ICU families.

This week we send our sincerest thanks to the Global Hydranencephaly Foundation! The Global Hydranencephaly Foundation offers support, information, guidance, and resources to families with a child diagnosed with Hydranencephaly. Hydranencephaly is a rare neurological condition, knowingly occurring in fewer than 1 in 10,000 births across the globe, in which the brain's cerebral hemispheres are absent and replaced with sacs of cerebrospinal fluid.

Their future efforts have the potential to change the lives of thousands of families across the globe; many already involved with the cause. Grants will be awarded for assistance with therapeutic services, equipment, medical costs, and other financial responsibilities of caring for these children. Information for adoption and designated care to insure families are not overwhelmed by the amount of involvement required in caring for these children will also be shared. Awareness campaigns and merchandise to create recognition of the cause and what this condition is will be made available. The ultimate goal of this foundation is not to cure, but to simply insure these little lives are allowed to shine!

Please take a moment to thank this wonderful foundation for making a difference in the lives of families facing a Hydranencephaly diagnosis!


Thank you for sharing this! My apologies that I hadn't seen it sooner!

~Ali, Founder Global Hydranencephaly Foundation

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